Further Follicept civil conversation

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  • bigentries
    Senior Member
    • Dec 2011
    • 465

    Originally posted by serenemoon
    Leave the dude alone man, This is not the time.
    If not now, when?

    Seriously, it is a big claim, but we've seen NW1s with sick density who talk about how awful their hair loss is.

    He chose to make this public, he is not immune to questioning.

    If I was him, and he is really saying the truth, then I would have waited a little bit to inform the community. People here are already giving him medical advice and posting clinical studies explaining the reaction. I think follicept should be the ones taking care of him at the moment, not having people put ideas into his head

    The first neutral trialist gets an adverse reaction a few days into its treatment. You either have to question his neutrality or Follicept ethics.

    Comment

    • serenemoon
      Senior Member
      • Jan 2014
      • 210

      Originally posted by bigentries
      If not now, when?

      Seriously, it is a big claim, but we've seen NW1s with sick density who talk about how awful their hair loss is.

      He chose to make this public, he is not immune to questioning.

      If I was him, and he is really saying the truth, then I would have waited a little bit to inform the community. People here are already giving him medical advice and posting clinical studies explaining the reaction. I think follicept should be the ones taking care of him at the moment, not having people put ideas into his head

      The first neutral trialist gets an adverse reaction a few days into it's treatment. You either have to question his neutrality or Follicept ethics.
      "People's" theories are valid, and similar to Follicept theories. Follicept has already given him direction. There is nothing here that has been said that Dr. Hsu hasn't suggested as possibilities. StayThick even asked for theories, not for us to come over and force him to do things.

      The guy is alarmed. I am not surprised he informed the community this soon.

      I agree that he is not immune to questioning, but have some compassion for the man. Instead of saying things like "You better show your pics StayThick." Things will come to light in their own time. Let him figure out what is going on first.

      Comment

      • champpy
        Senior Member
        • Apr 2015
        • 336

        Could contact dermatitis only affect one area of the body, such as his crown where the shedding is occurring? Im very interested to see how the area on the leg reacts. Sorry this is happening to you Staythick

        Comment

        • FooFighter
          Member
          • Feb 2015
          • 90

          Maybe he will start to grown hair like crazy in next days/weeks? Who knows?

          Maybe this is just first reaction, because everybody react different on same drug/treatment.

          Comment

          • StayThick
            Senior Member
            • Oct 2012
            • 624

            Originally posted by bigentries
            If not now, when?

            Seriously, it is a big claim, but we've seen NW1s with sick density who talk about how awful their hair loss is.

            He chose to make this public, he is not immune to questioning.

            If I was him, and he is really saying the truth, then I would have waited a little bit to inform the community. People here are already giving him medical advice and posting clinical studies explaining the reaction. I think follicept should be the ones taking care of him at the moment, not having people put ideas into his head

            The first neutral trialist gets an adverse reaction a few days into its treatment. You either have to question his neutrality or Follicept ethics.

            Dude, you're lucky I am even trying this. The whole reason I volunteered was for all of us on this very forum since it's the only one I have been a part of for years and it's filled with many depressed and angry skeptics. What pictures would you like from me?

            The above pic is what my sink looked like after I already shed a ton of hair. The pic was taken right after I was advised to wash my hair when this was all occurring. Guess what? Majority hair went down the sink and look what remained on the side walls. This just gives you a "glimpse" to the reaction I had. Again, my hair was shedding quickly with an intense itch. This picture was taken after a shampoo and when most hair went down the drain. Take what you will, but that is no "it's in my head and I'm stressed type of shed." I mean are you kidding me. Are you really questioning my sanity and the hair that was all over my hands, pillow, and sink?

            Why would you want me to wait before informing you guys? I have no problem doing that moving forward if I attempt to do more applications, but I don't understand where you're going with that statement. I would think this alarming situation would be something I would want to see on this very forum if one experienced this. Wouldn't you? You don't make any sense. I am trialing this for everyone on this forum and wanted to report my progress and experience throughout, including this unforeseen situation.

            I also took pics of the area on my leg I applied a little of a 3rd vial too. Currently, I am waiting to see if there is going to be a reaction. Devon advised I try this as well. I'll be reporting back soon.

            Comment

            • Keki
              Senior Member
              • Mar 2015
              • 232

              Dude some photo with a freaking 10/10 women and a 10/10 guy are public, you may want make them private

              btw if that guy is you i don't think you have aga at all looking from behind, zero thinning on top

              Comment

              • StayThick
                Senior Member
                • Oct 2012
                • 624

                Originally posted by Keki
                Dude some photo with a freaking 10/10 women and a 10/10 guy are public, you may want make them private
                Keki, Not sure what happened. I'm having issues uploading. 10/10 woman? 10/10 guy?

                Comment

                • bigentries
                  Senior Member
                  • Dec 2011
                  • 465

                  Originally posted by StayThick
                  Are you really questioning my sanity and the hair that was all over my hands, pillow, and sink?
                  I question the sanity of anyone that goes into a half-assed trial of an experimental treatment. Your hairs, dude, I don't even know you, how am I supposed to know without pictures, past and present?

                  I said that you could have waited until things calmed down. Maybe in a few days you'll say you might exaggerated a little bit. I'm giving them the benefit of the doubt, these kind of reactions can affect the company badly. It's great to the community to know things 24/7, but you can only see the big picture in retrospect

                  I don't even know if they are breaking any law if they give something to people that can have these sort of side effects. I honestly expected some ambiguos thing from all this, not good or bad

                  Comment

                  • Keki
                    Senior Member
                    • Mar 2015
                    • 232

                    Yep in the same album there were a baby a man and a women and everyone were beautiful lol, dunno if it's you and your family, you may want to put the sink and leg picture in a new album and make the other pics private

                    Comment

                    • StayThick
                      Senior Member
                      • Oct 2012
                      • 624

                      Originally posted by Keki
                      Yep in the same album there were a baby a man and a women and everyone were beautiful lol, dunno if it's you and your family, you may want to put the sink and leg picture in a new album and make the other pics private
                      Keki, thanks for informing me on this. The woman is my girlfriend, the baby is my newborn niece, the gentleman my younger brother who got fortunate from a hair standpoint. Thanks for the kind words.

                      I'll need to find another way to upload these and yes I made everything private now. Thank you.

                      Comment

                      • Keki
                        Senior Member
                        • Mar 2015
                        • 232

                        You can make an album on imgur, just drag the pics, as easy as that

                        Comment

                        • StayThick
                          Senior Member
                          • Oct 2012
                          • 624

                          Originally posted by bigentries
                          I question the sanity of anyone that goes into a half-assed trial of an experimental treatment. Your hairs, dude, I don't even know you, how am I supposed to know without pictures, past and present?

                          I said that you could have waited until things calmed down. Maybe in a few days you'll say you might exaggerated a little bit. I'm giving them the benefit of the doubt, these kind of reactions can affect the company badly. It's great to the community to know things 24/7, but you can only see the big picture in retrospect

                          I don't even know if they are breaking any law if they give something to people that can have these sort of side effects. I honestly expected some ambiguos thing from all this, not good or bad
                          I guess I reacted quickly because of how concerned I was. I still would not have hid this information from the forum or Devon and Dr. Hsu at Follicept. In fact, they have encouraged me throughout to post my honest, personal experience on this forum so that's what I planned to do.

                          Comment

                          • Keki
                            Senior Member
                            • Mar 2015
                            • 232

                            Well i will go to bed now but i want to let you know that i have shed the same amount of hairs in the sink last month with seasonal shedding, about 30 hairs left in the sink , other 60+ while washing (and other 10-20 little hairs after the blow drier), i'm right now using only nizoral and i'm not allergic so only aga and season cycle, that's not a massive level of shed especially if you didn't wash your hair the same day, there is hope, if your leg doesn't have any reaction i'm pretty confident you can try monday again, but it's up to you

                            good luck

                            Comment

                            • StayThick
                              Senior Member
                              • Oct 2012
                              • 624

                              Originally posted by Keki
                              You can make an album on imgur, just drag the pics, as easy as that
                              Thanks Keki. You rock. Attached is the bathroom sink with the remains of the hair that shed that did not go down the drain. As I mentioned in my response prior. This picture was taken after a good amount hair was sticking to my hands (from gel), my pillow, and then AFTER I washed my scalp and had it drain. The hair you see is what stuck to the side walls. This is was sent me in a slight panic.

                              Thanks Keki and thanks for saying my girl is a 10/10. Goes to show you that a full head of thick hair isn't required to land a smoke-show. My brother though, pisses me off he can pull a David Beckham and someone from the same gene pool can't...but I digress..I'm still better looking than him

                              [IMG][/IMG]

                              Comment

                              • StayThick
                                Senior Member
                                • Oct 2012
                                • 624

                                Originally posted by Keki
                                Well i will go to bed now but i want to let you know that i have shed the same amount of hairs in the sink last month with seasonal shedding, about 30 hairs left in the sink , other 60+ while washing (and other 10-20 little hairs after the blow drier), i'm right now using only nizoral and i'm not allergic so only aga and season cycle, that's not a massive level of shed especially if you didn't wash your hair the same day, there is hope, if your leg doesn't have any reaction i'm pretty confident you can try monday again, but it's up to you

                                good luck
                                No reaction to leg. None. I think I will continue, but that doesn't change what occurred. Had a massive shed. Thanks Keki, much appreciate your responses.

                                Comment

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