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  • 1Aristotle
    replied
    Originally posted by PropeciaVictim
    I also have a loss in sensation from Propecia. Let me warn you to never take the drug again since you are at increased risk for much worse side effects.

    The urologist will probably not be able to help you much with the loss of sensation, at least in my experience, but it is worth a try to consult with one. You may want to request neurological testing be done to make sure your sensory nerves are functioning properly. In my case they were not. Good luck and keep us updated.
    How long were you on Propecia ?

    Leave a comment:


  • PropeciaVictim
    replied
    Originally posted by khan
    PropeciaVictim, as you claim yourself, these cases are more than just prevalent. They are all over the internet, every forum is filled with users claiming permenant sides. I find it hard to believe in this current day, somone wouldn't know of them. All you have to do is google propecia/finasteride.

    But even then, why would you repeatedly bombar abusername with info he already knew? He already stated he had been on propeciahelp and spent time there. Whats the point of repeatedly prophesying his doom day. I have seen this happen at so many different threads.

    Even if people are as naive as you think them to be, somone who claims to already know of prophecia help, why would predict his side effects for him. I have seen this happen at every thread.
    I have several points.

    1. While many people know of these side effects (definitely not all) they are commonly dispelled by doctors who do not know of the side effects. Many doctors who prescribe the drug do not know about websites like Propecia Help and their advice is trusted more than people with direct experiences with the drug who know more about all facets of the drug.

    2. You are misrepresenting my posts entirely. I NEVER predicted he would have side effects. In fact I told him the chance of getting side effects was minimal. He incorrectly believed that being of 'sound mind and body' would help me ward off side effects when he was taking a complete risk plunge the second he took his first pill. It is not possible to monitor developments as the damage occurs instantaneously in many cases, as is what happened with him.

    3. My posts had absolutely nothing to do with the development of his issues. They were purely iatrogenic, medicine related, and I merely attempted to help guide him into making the best decision for himself that was not based on misconceptions. I have succeeded in the past, in this instance, he possibly discounted the advice I gave based on my experience and knowledge. Perhaps he was prepared to take the risk as well, which is totally fine as well but unfortunately he will have to live with the consequences now for an indefinite period of time.

    4. Propeciahelp does not come up on the first page of google when you search Propecia. It is towards the bottom of the first page for Propecia Side Effects.

    5. Please go back and reread my posts before you misrepresent my words. I am here to try and help people make the right choices for themselves. There are many myths surrounding Propecia usage that are worth dispelling. To bring truth and rational thought to the Propecia consumer is my objective.

    Leave a comment:


  • khan
    replied
    PropeciaVictim, as you claim yourself, these cases are more than just prevalent. They are all over the internet, every forum is filled with users claiming permenant sides. I find it hard to believe in this current day, somone wouldn't know of them. All you have to do is google propecia/finasteride.

    But even then, why would you repeatedly bombar abusername with info he already knew? He already stated he had been on propeciahelp and spent time there. Whats the point of repeatedly prophesying his doom day. I have seen this happen at so many different threads.

    Even if people are as naive as you think them to be, somone who claims to already know of prophecia help, why would predict his side effects for him. I have seen this happen at every thread.

    Leave a comment:


  • PropeciaVictim
    replied
    Khan - You would be right if everybody TRULY did know about the side effects of taking the drug. The difference is that they aren't very well publicized and many men are taking the pills without fully understanding the potential consequences of their decision. Additionally, many doctors are also not informed as well and if you read through my post history there are plenty of guys who learned of this through my information.

    I took the drug a couple of years ago, before the cases was as prevalent as they were today, but I was still misinformed by several doctors who told me long-term side effects were not possible from Propecia. As I wanted to believe this, I simply took the drug without any worry until the side effects onset immediately without much warning.

    Leave a comment:


  • khan
    replied
    Hey guys, this is my first post on this forum but I have been silently following for a long time.

    Charger, you're like the voice of reason. I wish there were a lot more users like you. I thought it was great the way you guys replied to the insecure Dr.Crisler.

    I think Propecia help is a great place for support and info. If people have had bad experiences, its important to know. I hope everyone suffering there recovers fast, no one should have to go throught that.

    But what I fail to understand is everything thats been said by Propecia help users, on this thread and on numerous others, we already know. PropeciaVictim, dude you didn't say anything absurname already didn't know. You just kept reminding him of sides that he already knew of.

    I mean, when you google the word propecia the first thing that pops up is propecia help, we've all been there. So whats the point of bombarding every thread, even when no one even mentions the word side. I have seen threads where users would just drop by to report good results and instantly there are replies of prophecies of their impending doom thrown at them. Whats the point of all that?

    Leave a comment:


  • PropeciaVictim
    replied
    I also have a loss in sensation from Propecia. Let me warn you to never take the drug again since you are at increased risk for much worse side effects.

    The urologist will probably not be able to help you much with the loss of sensation, at least in my experience, but it is worth a try to consult with one. You may want to request neurological testing be done to make sure your sensory nerves are functioning properly. In my case they were not. Good luck and keep us updated.

    Leave a comment:


  • abusername
    replied
    Originally posted by PropeciaVictim
    Men that have MPB don't have lower DHT levels on average. They typically have a genetic sensitivity to DHT which causes their hair to shed that other men do not.

    Propecia, as it is intended, lowers DHT levels to abnormally low levels in men to prevent the hormone from triggering hair loss. To the best of my knowledge, having MPB or not will not make a difference in susceptibility to hair loss. Have you spoken with the original doctor that prescribed Propecia?

    I did, he said that he had never heard of loss of sensitivity from propecia blah blah and then said if it didnt clear up in a week to contact a recommended urologist.

    But 100% sensitivity in the head/frenulum of my penis just not in the shaft so i'm not gunna bother.

    I suppose i just need to see a doc, i was actually just gunna post pics showing how great rogaine has done for me in just 1 month and 2 weeks.. and its making me question whether i have mpb or not, but i suppose only a doc can tell!

    Leave a comment:


  • PropeciaVictim
    replied
    Originally posted by abusername
    Hey guys, just wanted to jump in here with a quick question that may or may not be answered. I was wondering could it be possible that i don't have mpb and that is why i suffered so much from the side effects? Like my dht was normal to begin with so blocking it put me at below normal levels?

    I know i should see a doc about it but i'm broke! So some advice would be very very helpful :-)
    Men that have MPB don't have lower DHT levels on average. They typically have a genetic sensitivity to DHT which causes their hair to shed that other men do not.

    Propecia, as it is intended, lowers DHT levels to abnormally low levels in men to prevent the hormone from triggering hair loss. To the best of my knowledge, having MPB or not will not make a difference in susceptibility to hair loss. Have you spoken with the original doctor that prescribed Propecia?

    Leave a comment:


  • abusername
    replied
    Hey guys, just wanted to jump in here with a quick question that may or may not be answered. I was wondering could it be possible that i don't have mpb and that is why i suffered so much from the side effects? Like my dht was normal to begin with so blocking it put me at below normal levels?

    I know i should see a doc about it but i'm broke! So some advice would be very very helpful :-)

    Leave a comment:


  • PropeciaVictim
    replied
    I think its very unlikely that its in your head. As I mentioned before, psychological stress is not likely to cause penile insensitivity of all conditions. When I initially dealt with my situation and didn't really know what to do I unconsciously hoped the problems were in my head since they could vanish at a moment's notice. I let myself believe this and ignore the problem for some time until 3-6 months had elapsed.

    As your doctor said, it can take some time to resolve but there isn't good data on this. There isn't much you can do that we know about so hang tight and you may want to get it further investigated if you are fully at baseline after 3 months.

    Leave a comment:


  • the_charger
    replied
    This thread should stay up, it might be useful for someone else thinking about going on propecia!

    I honestly dont think propeciavictim has ill intentions other than the fact that he wants people to start taking his condition seriously. Hes really only trying to help I think, but I guess some people get very defensive and grow stronger in their beliefs when questioned, or when they begint to debate!

    i think it just takes a little bit of doubt in your mind, even if you dont even realize it, for bad things to start happening. Like Zao pointed out, people didn't start constantly complaining about side effects until it became mainstream.. Now it seems everyone that goes on propecia is expecting to have side effects. Some even say that since they havent had side effects that they are getting fake pills! Its sort of crazy how far all this has gone!

    Leave a comment:


  • abusername
    replied
    Originally posted by PropeciaVictim
    Despite your immature imprudence, I still would not wish this fate on you and hope you recover. I really was only trying to let you know of this real risk, since many people are not aware of them when they initially decide to take the drug. You were aware of them supposedly, so to a large extent you are responsible for your fate if you don't recover.

    Merck literature (not to be believed) says the average customer with side effects will rebound in 2 weeks and it appears as though it has been a month since you quit Propecia. It is getting to be a little late, but there is still a good chance they will naturally reverse. I hope you get better and please keep us updated in the coming weeks.
    You are right, i'm sorry i overreacted. Honestly i just want this whole thread down but this forum doesn't have an option to delete threads? I've emailed the site as well but no response. I just want to get on with my life and not think about my hair, but that is not really likely.

    Who knows, maybe this is all really in my head, I still function 100% normally as i've discovered with much practice :-D. Maybe just not thinking about it for a while will help.

    Leave a comment:


  • PropeciaVictim
    replied
    Originally posted by abusername

    Also to propecia victim, **** U your contstant mention of side effects didn't help.. like i said even before he came in i was aware of the sides but seeing them every time i wanted to check out my thread didnt help keeping it off my mind.
    But do believe me that i experienced sexual side effects that are taking a little bit to go away sooo of course i'm not saying nobody should try propecia, i encourage people to try it because if i had not tried it then i would have gone my whole life wondering what if.
    Despite your immature imprudence, I still would not wish this fate on you and hope you recover. I really was only trying to let you know of this real risk, since many people are not aware of them when they initially decide to take the drug. You were aware of them supposedly, so to a large extent you are responsible for your fate if you don't recover.

    Merck literature (not to be believed) says the average customer with side effects will rebound in 2 weeks and it appears as though it has been a month since you quit Propecia. It is getting to be a little late, but there is still a good chance they will naturally reverse. I hope you get better and please keep us updated in the coming weeks.

    Leave a comment:


  • abusername
    replied
    Right-o

    sorry about the whole not responding thing, i haven't checked this thread since my last post because i have lots of shit going on it being summer and all. Also because i wanted to keep all this shit totally out of my mind while i'm out on vacation.

    It's been like 3 weeks since i've been off the meds, happy to say i can get/maintain/pleasewith my erection just like i did before the medicine.

    Honestly, the propecia hasn't been on my mind for the past week at all except for the one rather shitty/scary side effect which is the lack of sensitivity in my penis. I talked to my doctor who said that its common for the sides to last for up to 2 months. Anyways, i'm confident i'll be fixed up and good as new by that time.

    Also to propecia victim, **** U your contstant mention of side effects didn't help.. like i said even before he came in i was aware of the sides but seeing them every time i wanted to check out my thread didnt help keeping it off my mind.
    But do believe me that i experienced sexual side effects that are taking a little bit to go away sooo of course i'm not saying nobody should try propecia, i encourage people to try it because if i had not tried it then i would have gone my whole life wondering what if.

    Leave a comment:


  • PropeciaVictim
    replied
    Originally posted by PatientlyWaiting
    You were absolutely terrorizing him throughout the whole thread. I'm 100% sure that if you would have never posted here and he would have stayed positive, none of this would have happened.
    You are 100% wrong. Your willingness to declare you are 100% certain about anything, let alone a situation where you have close to no facts, highlights your ignorance.

    The nocebo effect cannot mimic nerve dysfunction. Also, go back and read his tone. He did not express a single worry about taking the drug, unlike many other guys who timidly accept to try the drug and have no problems. Here is a contradiction you will not be able to reconcile.

    Leave a comment:

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