-
04-19-2015 02:12 PM
#1521
Senior Member
Originally Posted by serenemoon
"In pursuit of that, we will be doing a convenience sample asap on a handful of people, not much different than a backwoods experiment- "Hey Jimbo, 'mere. Try this crap out! I done made a concoction". We will show you those results as a courtesy. Those results will be as rigorously and consistently reported as they can be, but understand skepticism still at that point.
The results of that less rigorous (only because they are not randomized, blinded, or placebo controlled), convenience sample will tell us if it seems to be working or not, in very generous terms, and if it's worth spending a ton of time and effort and money to go forward with a larger trial.
This larger trial will be randomized, double-blind, placebo controlled, IRB approved, and statistically significant, and will yield data that we can publish in peer-reviewed journals. In other words, good science. We may or may not launch Indiegogo before or during this trial, just depending on what we are seeing. If I have said it once, I have said it a thousand times: scientific integrity is paramount, and we will not take your money until convinced it will be effects. Trust me, our standard of evidence is higher than yours. " - Devon.
I am sure if they are going to send out samples to BTT peeps, it will be during the larger trial phase. Don't worry, it won't depend on just Devon's hair. Even the initial "convenience trial" will have a few people in addition to Devon.
IRB approved trial: they won't check if it actually works. They check methodology etc but there it stops. In fact, its main goal is to protect the test persons (make sure they're safe, getting paid etc). And peer-reviewed journals, that's been all layed out before, these guys dont even care if it's real or not. They just check methodology and if it's relevant to them.
I don't care about all that. And anyone with a critical mind should neither. A test among 20 members is MUCh more reliable. No way faking that !
And no, these are not 'conspiracy theories' or whatever. Just what we've seen before ! The peer reviewed scientific journal that published Gho's article said it themselves ! They did NOT verify any of the claims made in the article.
-
04-19-2015 02:16 PM
#1522
I agree FrenchNewbie. I don't think it would be in Follicepts best interest to conduct themselves in this manner. I do get where Arashi and co. are coming from but I don't think it necessary to do this. I'm content letting them do their own trials and I'm pretty sure they are straight shooters, so I don't need any convincing. I'll just wait to see their results and if it looks promising, I will buy the product myself and test it myself with no expectations. If it doesn't work for me, I'm not gonna lose any sleep over it. We will see what happens either way.
-
04-19-2015 02:41 PM
#1523
Originally Posted by Arashi
IRB approved trial: they won't check if it actually works. They check methodology etc but there it stops. In fact, its main goal is to protect the test persons (make sure they're safe, getting paid etc). And peer-reviewed journals, that's been all layed out before, these guys dont even care if it's real or not. They just check methodology and if it's relevant to them.
I don't care about all that. And anyone with a critical mind should neither. A test among 20 members is MUCh more reliable. No way faking that !
And no, these are not 'conspiracy theories' or whatever. Just what we've seen before ! The peer reviewed scientific journal that published Gho's article said it themselves ! They did NOT verify any of the claims made in the article.
You misunderstand. If you are talking about how they won't check for results in the actual IRB trial, that is not true. In addition to safety, they have admitted that they will test for efficacy. Efficacy is what they will test for. THey will see if the product is effective. They will make sure if it works. Software will be used to analyze hair counts. They are going to see if the product actually grows hair. I said it multiple ways, hopefully one of them registers.
I sincerely hope you get your BTT trial, Arashi. I am not against it. I posted Devon's section to let you know how the trials will progress on their side, since you were worried that it will stop at Devon's hair if it does not work for him.
The conspiracy theories that FrenchNewbie is talking about are different from the ones you mention. He is worried if the forum trials results are too good, people will accuse Follicept of paying those 20 forum members. Different from what you mentioned.
-
04-19-2015 03:39 PM
#1524
Devon said us that it could be all or nothing with results.
But it's not the only problem. It could be very risky for Follicept. Arashi spoke about the death of a forumer who tried a product from a dr (i don't remember who it was). You can't say that it was this product who killed him before an autopsy or investigations. Or, it could be a person who have a cancer after taking Follicept. If this unfortunatelly arrives it will kill our hopes about this product.
I don't know if this product will work, but i can say one thing. Yesterday and today, i was happy. I had a big smile. IGF-1 (for me) could be a real hope. Please see the captures took by Noisette (he is Ryuteam on Doctissimo): http://club.doctissimo.fr/ryuteam/photo/ . He asked some specialists via Linkedin about Follicept and IGF-1 administrated by a gel. It seems that the way took by Follicept is a good way.
Ps: Excuse me one more time for my poor english. I can't explain my ideas as i can do with my mother thongue. You could think that i'm a silly guy with my ideas under explained.
-
04-19-2015 04:03 PM
#1525
Originally Posted by FrenchNewbie
Devon said us that it could be all or nothing with results.
But it's not the only problem. It could be very risky for Follicept. Arashi spoke about the death of a forumer who tried a product from a dr (i don't remember who it was). You can't say that it was this product who killed him before an autopsy or investigations. Or, it could be a person who have a cancer after taking Follicept. If this unfortunatelly arrives it will kill our hopes about this product.
I don't know if this product will work, but i can say one thing. Yesterday and today, i was happy. I had a big smile. IGF-1 (for me) could be a real hope. Please see the captures took by Noisette (he is Ryuteam on Doctissimo): http://club.doctissimo.fr/ryuteam/photo/ . He asked some specialists via Linkedin about Follicept and IGF-1 administrated by a gel. It seems that the way took by Follicept is a good way.
Ps: Excuse me one more time for my poor english. I can't explain my ideas as i can do with my mother thongue. You could think that i'm a silly guy with my ideas under explained.
Your English is great, no worries! My French on the other hand, hah! Also you make valid points, I see where you are coming from. Also, thanks for the link. Nice to see other professionals with actual degrees seeing so much potential here and acknowledging that igf1 does I'm fact grow hair. Thanks to Noisette too 😊
-
04-19-2015 04:08 PM
#1526
Originally Posted by serenemoon
Your English is great, no worries! My French on the other hand, hah! Also you make valid points, I see where you are coming from. Also, thanks for the link. Nice to see other professionals with actual degrees seeing so much potential here and acknowledging that igf1 does I'm fact grow hair. Thanks to Noisette too ��
Where do you see anyone doing that? Aside from a young guy who has probably no expertise in hair follicle biology and co-authored with Dr. Hsu himself on some papers? Link direct picture & proof please.
-
04-19-2015 04:12 PM
#1527
FrenchNewbie great find. I agree with Serenemoon that it's nice to see professionals with graduate degrees commenting on IGF-1. I love how they refer to Dr. Hsu as Stephen. I can't stand to watch people (no names here) try to attack a product that they have no idea how it works. It's just plain ignorant and the majority of them think they're educated on the matter but haven't put their life's work into curing diseases.
-
04-19-2015 04:13 PM
#1528
Originally Posted by Swooping
Where do you see anyone doing that? Aside from a young guy who has probably no expertise in hair follicle biology and co-authored with Dr. Hsu himself on some papers? Link direct picture & proof please.
Everyone who responded with an opinion acknowledged that there is potential. Dr. Tausif Alam specially said it is a growth promoter.
-
04-19-2015 04:17 PM
#1529
Swooping, please post a picture of your graduate degree and a link to your publications proving your knowledge on alopecia.Link direct picture & proof please.
-
04-19-2015 04:18 PM
#1530
Originally Posted by Clion1995
Swooping, please post a picture of your graduate degree and a link to your publications proving your knowledge on alopecia.Link direct picture & proof please.
+1
Posting Permissions
- You may not post new threads
- You may not post replies
- You may not post attachments
- You may not edit your posts
Forum Rules
|
» IAHRS
» The Bald Truth
» americanhairloss.org
|
Bookmarks