Frontal Fibrosing Alopecia (FFA)

Hello All!

I am 31 years old and have been suffering from hairloss since I can remember. Doctors are fairly confident that I have Frontal Fibrosing Alopecia (FFA). Would love to know if other young women might have this and how they are dealing with it. Any treatment options that work? And if anyone can recommend a super competent doctor that treats FFA specifically in the NY region, that would be great!