Lots Of Ideas on the Forum: So Crowdfund

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  • Sixers
    Junior Member
    • Jun 2013
    • 6

    Thats a pretty bad comparison. To be honest with you I think this issue is bigger than people play it to be. I've been having some suicidal thoughts lately. Not solely on my hair loss, but I'd be lying if I told you that its not a major concern. Overall its making me very depressed and I'm only 24 years old. We can make a difference and raise awareness if we do it collectively. Especially with all of the social outputs now a days. The question is, are we prepared for that? Do we have enough confidence to do this? Time will tell

    Comment

    • hellouser
      Senior Member
      • May 2012
      • 4423

      Originally posted by Sixers
      Thats a pretty bad comparison. To be honest with you I think this issue is bigger than people play it to be. I've been having some suicidal thoughts lately. Not solely on my hair loss, but I'd be lying if I told you that its not a major concern. Overall its making me very depressed and I'm only 24 years old. We can make a difference and raise awareness if we do it collectively. Especially with all of the social outputs now a days. The question is, are we prepared for that? Do we have enough confidence to do this? Time will tell
      The bigger issue is this:

      Suppose you raise 50 million dollars. What next? When's the cure going to come out? 1 year from now? 3 years? 5? 10? All of the researchers always flap their effing gums and say 'within 5 years' but we all know that everytime one of them that has said that has been horseshit (if it were true we wouldn't still be using minox and finasteride after 20 years!).

      You could raise all the damn money in the world but its STILL not going to get you hair anytime soon because one major obstacle:

      FDA.

      Granted USA isn't the only country in existence but far too many people have no idea that there exists a world outside of its borders. However, a large number of people will want to have their treatments done in USA. I've been saying all along that trials and approvals should be done in Japan thanks to its new legislation so to hell with taking business to USA, but again.... even with an unlimited supply of funds, what guarantee do you have that you're going to get a treatment anytime soon EVEN IF your funds have helped create a terminal hair growing follicle?

      You know, researchers have known about cells in follicles for almost 40 years and they have jack shit to show for it? Don't have too much faith in these guys either... they're largely *gulp* incompetent.

      Comment

      • Sixers
        Junior Member
        • Jun 2013
        • 6

        I hear you man, but I would just like to raise some awareness and possibly speed things up. Maybe it's the whole Ice Bucket ALS Awareness fad going on, but it's hard to ignore the attention and effect it's having on society. I think more people need to know what we're going through, especially the younger balding men. Depression is a serious disorder and MPB can have a very agonizing effect and your well being and overall mental health. Also, another thing we have going for us is social media and the overall unity of others going through the same thing. It doesn't matter what race, religion, social status, political association you identify yourself as, we all can agree that MPB, especially too soon, sucks.

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        • moleular
          Junior Member
          • Jun 2014
          • 18

          Hi All,

          Sorry for the delay - I had some things to sort out.
          Please see my last post in the ADSC topic for my funding initiative, as it is related to this.

          Comment

          • walrus
            Senior Member
            • Feb 2012
            • 298

            Originally posted by hellouser
            You know, researchers have known about cells in follicles for almost 40 years and they have jack shit to show for it? Don't have too much faith in these guys either... they're largely *gulp* incompetent.
            It is easy to call people incompetent when you have little understanding of the complexities involved.

            Comment

            • hellouser
              Senior Member
              • May 2012
              • 4423

              Originally posted by walrus
              It is easy to call people incompetent when you have little understanding of the complexities involved.
              40 years.

              Comment

              • hellouser
                Senior Member
                • May 2012
                • 4423

                Originally posted by Sixers
                I hear you man, but I would just like to raise some awareness and possibly speed things up. Maybe it's the whole Ice Bucket ALS Awareness fad going on, but it's hard to ignore the attention and effect it's having on society. I think more people need to know what we're going through, especially the younger balding men. Depression is a serious disorder and MPB can have a very agonizing effect and your well being and overall mental health. Also, another thing we have going for us is social media and the overall unity of others going through the same thing. It doesn't matter what race, religion, social status, political association you identify yourself as, we all can agree that MPB, especially too soon, sucks.
                And it's exactly THAT kind of campaign that I was talking about before that I'd like to see go viral for hair loss.

                This Ice Bucket Challenge is a spin off of 'Neknominate'



                Sample videos:

                Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.


                Essentially, its just an online drinking game; you get dared to do something crazy drinking alcohol and then you nominate three other people.

                Of course, you could apply a similar trend to hair loss (like getting someone to shave it all off or something)... but I think it will eventually become a lame hipster fad and miss the point completely.

                But anyway... we need some transparency from the researchers of how far they REALLY are creating terminal hair growing follicles. At this point they need incentives to create socially acceptable follicles (none of this velus or microfollicle crap) and then an crowdfunding campaign would cover ALL of their costs for clinical trials but I would like to see the team get a nice BONUS too as a reward for actually getting something DONE for once.

                Comment

                • walrus
                  Senior Member
                  • Feb 2012
                  • 298

                  Originally posted by hellouser
                  40 years.
                  40 years is nothing in the grand scheme of things.

                  Comment

                  • inbrugge
                    Senior Member
                    • Oct 2013
                    • 244

                    I don't think raising public awareness for hair loss will accomplish anything. The ALS ice bucket thing is nothing more than a fad, I bet more than 50% of people have no idea even what the disease is.

                    The only hope is large pharmas realizing that there are millions of people across the globe who are willing to pay for a topical DHT blocker without significant sides.

                    Comment

                    • Kudu
                      Senior Member
                      • Nov 2013
                      • 206

                      Originally posted by inbrugge
                      I don't think raising public awareness for hair loss will accomplish anything. The ALS ice bucket thing is nothing more than a fad, I bet more than 50% of people have no idea even what the disease is.

                      The only hope is large pharmas realizing that there are millions of people across the globe who are willing to pay for a topical DHT blocker without significant sides.
                      Exactly, everyone my age (17-19) thinks it's just something to get more followers on twitter, I asked everyone that brought it up of they knew what it was for, no one had a clue. Whenever someone my age asks about my hair loss they look at me quizzically and say "why don't you just get bosley?" I tell them it's not that simple. To them, baldness is already cured. At least I don't catch hell for balding though.

                      Comment

                      • lfneves
                        Junior Member
                        • Dec 2014
                        • 1

                        How is the project going? I feel it's a great idea and would definitely take part

                        Comment

                        • hellouser
                          Senior Member
                          • May 2012
                          • 4423

                          Originally posted by lfneves
                          How is the project going? I feel it's a great idea and would definitely take part
                          Got stalled thanks to the naysayers. These are the same people that are complacent with current treatment, now matter how ineffective they are.

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