Bald Truth Talk - Hair Loss, Hair Transplant and Hair Restoration Community  

Go Back   Bald Truth Talk - Hair Loss, Hair Transplant and Hair Restoration Community > Men's Hair Loss > Hair Loss Treatments
Register Blogs FAQ Members List Calendar Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 12-21-2011, 07:45 PM   #1
blakes33
Member
 
Join Date: Dec 2011
Location: NY
Posts: 46
Default Anyone take Propecia Long Term & Quit w/out Problems

Just wondering if anyone can share experience with quitting propecia after many years of use and quit?

If so, how did your body recover? I have read about Post Finasteride Syndrome and after 13 years of being on and worried about potential hormone shift after quitting.

Lastly, after quitting how long was it before you started losing hair? My guess is hopefully it took several months?
blakes33 is offline   Reply With Quote
Old 12-22-2011, 01:56 AM   #2
ravegrover
Senior Member
 
Join Date: Jan 2011
Posts: 245
Default

Hi.. I was on Propecia for 7 years & then stopped. I did not experience anything. Hair started falling out pretty much right after and I had noticeable hair-loss in ~ 2 years.
That's when I re-started taking it everyday. Been on it again for ~ 5 years since. My advise - don't stop taking it!
ravegrover is offline   Reply With Quote
Old 12-22-2011, 01:56 PM   #3
blakes33
Member
 
Join Date: Dec 2011
Location: NY
Posts: 46
Default

That's my worry - there doesn't seem to be many men who have quit after longterm use with good results!!! Seems like people who have taken the drug for years and then quit suffer NEW sides... Some sort of hormonal shift!!!
I certainly hope this isn't the case - hopefully it's only a small minority of men who have permanent side effects that emerge only AFTER quitting (hopefully the majority do fine).

I hope that we can hear from several guys who took it for years, quit and are fine (healthy sexual functioning)!!


--thanks rave (sounds like YOU did fine stopping after 7 years) - let's hope there's more like you out there!!
--u said hairloss started right after, but that it was noticeabl at 2 yrs?
blakes33 is offline   Reply With Quote
Old 12-22-2011, 09:13 PM   #4
ryan555
Senior Member
 
Join Date: Oct 2010
Posts: 389
Default

Quote:
Originally Posted by blakes33 View Post
That's my worry - there doesn't seem to be many men who have quit after longterm use with good results!!! Seems like people who have taken the drug for years and then quit suffer NEW sides... Some sort of hormonal shift!!!
I certainly hope this isn't the case - hopefully it's only a small minority of men who have permanent side effects that emerge only AFTER quitting (hopefully the majority do fine).

I hope that we can hear from several guys who took it for years, quit and are fine (healthy sexual functioning)!!


--thanks rave (sounds like YOU did fine stopping after 7 years) - let's hope there's more like you out there!!
--u said hairloss started right after, but that it was noticeabl at 2 yrs?
I have never heard of anyone developing side effects after stopping when they had no side effects on the drug. I suppose anything is possible, but it is certainly not "many" men who experience this. I stopped almost 2 years ago after being on the drug for 12 years. All my hormone levels went back to where they are supposed to be as soon as I quit. A few days after I stopped the drug, I noticed slightly improved sexual performance and the return of morning erections. I guess I lost these while taking the pill and never even realized it.

As far as hair loss goes, I noticed some increased shedding starting a couple of months after I stopped and lasting several months. Nearly two years later, my hairline has thinned some, but I am certainly not bald as I thought I would be.
ryan555 is offline   Reply With Quote
Old 12-23-2011, 02:03 PM   #5
blakes33
Member
 
Join Date: Dec 2011
Location: NY
Posts: 46
Default

Quote:
Originally Posted by ryan555 View Post
I have never heard of anyone developing side effects after stopping when they had no side effects on the drug. I suppose anything is possible, but it is certainly not "many" men who experience this. I stopped almost 2 years ago after being on the drug for 12 years. All my hormone levels went back to where they are supposed to be as soon as I quit. A few days after I stopped the drug, I noticed slightly improved sexual performance and the return of morning erections. I guess I lost these while taking the pill and never even realized it.

As far as hair loss goes, I noticed some increased shedding starting a couple of months after I stopped and lasting several months. Nearly two years later, my hairline has thinned some, but I am certainly not bald as I thought I would be.
Thanks Ryan - great to hear from someone who took this longterm like me. I have been on since it was approved (~13 years). I'm like you for the most part - no problems at all really with the drug over that long period (dry skin and few other things at the end). Just curious, since you weren't having problems, why DID you decide to stop taking it?

Did you have ANY adjustment period at all when you quit? - after all, your body goes through a hormonal shift (good thing) when the DHT is no longer suppressed. For me, I have noticed some testicle pain (particularly after sex)that is troubling, but hopefully is just my body just re-adjusting.... Did you quit cold-turkey?

When you say your hormone levels went back to normal - did you check them or did you just know by the way you felt?

Thanks for your input. I am at week 7 now without and hoping I recovery well...
blakes33 is offline   Reply With Quote
Old 12-23-2011, 04:09 PM   #6
ryan555
Senior Member
 
Join Date: Oct 2010
Posts: 389
Default

Quote:
Originally Posted by blakes33 View Post
Thanks Ryan - great to hear from someone who took this longterm like me. I have been on since it was approved (~13 years). I'm like you for the most part - no problems at all really with the drug over that long period (dry skin and few other things at the end). Just curious, since you weren't having problems, why DID you decide to stop taking it?
I stopped because I developed an unrelated health issue and my doctor wanted me off all medications while I am recovering.

Quote:
Did you have ANY adjustment period at all when you quit? - after all, your body goes through a hormonal shift (good thing) when the DHT is no longer suppressed. For me, I have noticed some testicle pain (particularly after sex)that is troubling, but hopefully is just my body just re-adjusting.... Did you quit cold-turkey?
Yes, I stopped cold turkey. The only adjustment was that I think my testosterone spiked for about a week. My sex drive was off the charts as I recall and I felt a little "amped" up.

Quote:
When you say your hormone levels went back to normal - did you check them or did you just know by the way you felt?
Yes, I had all my hormones checked before I stopped, one week after and one month after because I was paranoid after reading all the hysteria online. My testosterone went from about 700 while taking the finasteride, up to over 1,000 a week later, and then finally back down to about 650 afterward due to the decrease in free testosterone caused by the conversion of DHT. I had read that finasteride actually increases your testosterone levels a little bit so this was an expected outcome. I also saw my DHT level creep up from about 15 before to 25 at one week off and about 70 after a month (a normal level).

Quote:
Thanks for your input. I am at week 7 now without and hoping I recovery well...
Are you having side effects other than the pain after sex? It sounds like you're doing just fine. Trust me, if you were having some kind of hypogonadism or some of the other awful symptoms people talk about having, you would know it for sure. And you are not going to start having bad symptoms at 7 weeks off if you don't already have them.

I thought of two other side effects from the drug that became apparent only after stopping and having them reverse. First, I have noticed a definite increase in body hair since I stopped. Second, I have a stronger urine flow now that I'm off. That one still seems strange to me because the drug is supposed to shrink your prostate and should therefore have the opposite effect but I can say with certainty than this was the case for me.
ryan555 is offline   Reply With Quote
Old 12-26-2011, 01:09 PM   #7
blakes33
Member
 
Join Date: Dec 2011
Location: NY
Posts: 46
Default

Quote:
Originally Posted by ryan555 View Post
Yes, I had all my hormones checked before I stopped, one week after and one month after because I was paranoid after reading all the hysteria online. My testosterone went from about 700 while taking the finasteride, up to over 1,000 a week later, and then finally back down to about 650 afterward due to the decrease in free testosterone caused by the conversion of DHT. I had read that finasteride actually increases your testosterone levels a little bit so this was an expected outcome. I also saw my DHT level creep up from about 15 before to 25 at one week off and about 70 after a month (a normal level).



Are you having side effects other than the pain after sex? It sounds like you're doing just fine. Trust me, if you were having some kind of hypogonadism or some of the other awful symptoms people talk about having, you would know it for sure. And you are not going to start having bad symptoms at 7 weeks off if you don't already have them.
Ryan,

I had my hormone levels checked also - at 5 weeks out and everything looked good according to my Urologist. Testosterone was 564.

Yes, I am having some side effects like some difficulty with libido, getting good erection, etc. but I have been worried A LOT (from reading forums and hysteria as you mentioned) so I do believe (and hope) that this is psychological. The ONLY possibility it seems for anything to have gone wrong would have to have been after 5 weeks - and from what I have read of the horror stories most people know they have issues by 5 weeks out (most seem to know in the first couple to 3 weeks...).

I am actually considering going back on propecia and weening off VERY slowly. After all, I wasn't having ANY issues when I was taking.... IF my hormones are heading for a "crash" i would think the drug might offer some protection against it.... long enough then to figure out what to do/ ween off slowly to let my body adjust over longer period.

I would however like to have my levels checked again - What type of doctor checked your levels? How did you convince him/here to check three times like that in the course of only 1 month!!?? Lastly, did insurance pay or did you have to pay out of pocket to get that many in that short of time? (wish I knew of a lab i could walk up and tell them what to test for for couple hundred bucks...)
blakes33 is offline   Reply With Quote
Old 01-20-2012, 08:47 PM   #8
blakes33
Member
 
Join Date: Dec 2011
Location: NY
Posts: 46
Default

Quote:
Originally Posted by ryan555 View Post
I have never heard of anyone developing side effects after stopping when they had no side effects on the drug. I suppose anything is possible, but it is certainly not "many" men who experience this. I stopped almost 2 years ago after being on the drug for 12 years. All my hormone levels went back to where they are supposed to be as soon as I quit. A few days after I stopped the drug, I noticed slightly improved sexual performance and the return of morning erections. I guess I lost these while taking the pill and never even realized it.

As far as hair loss goes, I noticed some increased shedding starting a couple of months after I stopped and lasting several months. Nearly two years later, my hairline has thinned some, but I am certainly not bald as I thought I would be.
How aggresive was your hairloss when you started propecia? Was it frontal hair-loss?

I am kinda glad to be off now for 11 weeks but very worried I will have "catch-up" hairloss soon if I don't start back? I don't know if it's true that happens (Merck claims it does) but will I really go bald within a year?
blakes33 is offline   Reply With Quote
Old 01-21-2012, 06:09 AM   #9
bob13
Senior Member
 
Join Date: Jan 2012
Posts: 139
Default

Blake what happened to you.

Why ask now after taking it for 14 years . sounds really strange.
Just quit for 6 months and find out.
Your asking questions nobody can answer.
Everybody body is different.

But you'll lose a lot pretty soon.
Just take the pill and forget it.
Im old couldn't care less about sex.
I've had plenty.
bob13 is offline   Reply With Quote
Old 01-23-2012, 07:30 PM   #10
blakes33
Member
 
Join Date: Dec 2011
Location: NY
Posts: 46
Default

Yeah - not many worries until I found out the new information on propecia side-effects that have been recently released that are permanent.

I do realize that at 65 sex may not be that important anymore. But, at 35 my friend, loss of sexual ability is akin to losing the ability to walk!!!
blakes33 is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
peopecia side effects: stop taking it, half the dose, what of the long term effects? sapcote Hair Loss Treatments 0 11-22-2011 09:55 PM
Dr. Jeffrey Epstein / Male-750 grafts / Before, 1 day, long-term after Jeffrey Epstein, MD Hair Transplant Results By IAHRS Recommended Surgeons 0 08-01-2011 07:06 AM
Intro and long term Propecia user experience kal-el1975 Introduce Yourself & Share Your Story 1 01-05-2011 04:21 PM
Should I quit Propecia?? SE19 Men's Hair Loss: Start Your Own Topic 5 08-22-2010 09:29 AM
Dr. Jeffrey Epstein / 2400 grafts / 7 yr long-term results Jeffrey Epstein, MD Hair Transplant Results By IAHRS Recommended Surgeons 0 07-08-2010 08:24 AM

» The Bald Truth
» Recent Threads
Being bald or having no hair?
04-12-2014 06:34 PM
by Mribby1
Last post by PatientlyWaiting
Today 12:18 AM
New Guy, Receding Hair Line
04-10-2014 12:13 PM
by av8tor
Last post by Artista
Yesterday 09:56 PM
Sponsoring somebody to go to WCHR 2014
03-16-2014 07:36 AM
by Arashi
Last post by deuce
Yesterday 08:22 PM
» Newest Videos

Update On Hairloss 8/10/09...
My hair loss was getting worse, so I just got it cut really short now. I don't think it looks that b...


Hair Loss Remedy Myths Perpetuated Onlin...
We are sure these people mean well, but this is a prime example of why the snake oil industry thrive...


Hair Transplant | "SurgeonofNalts&q...
http://www.baldtruthtalk.comFounder of The American Hair Loss Association Spencer Kobren speaks with...


How Hair Loss Colors Our Lives | Spencer...
...


All times are GMT -7. The time now is 12:48 AM.