Quote:
Originally Posted by sausage
Does Spencer get involved with this stuff?
I mean I don't really know what he does on a day to day basis?
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I can't really speak to anything related to HST, but feel I can definitely answer this question. I know on a day to day basis Spencer works to assist people (men and women) dealing with hair loss via email and phone communication. I know this because he did it for me 13 years ago. Thirteen years ago I started to loose my hair as a result of coming off a high androgen birth control pill (Loestrin FE), I was 21 years old at that time and completely unable to cope or deal with what I was confronted with. I searched online for answers, but found none. In reading an article on some website, I found Spencer Kobren and sent him an email explaining my devastation and desperate plea for help. He didn't have to to write me back, but he did and that was biggest turning point in my life. Someone cared, someone listened and assisted me in seeing doctors that I would not have otherwise been afforded the luxury to see. There was no magic solution as a result of seeing these doctors, but that isn't the point. The point is he listened and took action to help a desperate 21 year old girl whom he had zero connection with or obligation to. That is indeed being a true consumer advocate. Much of this advocacy occurs with men and women behind the scenes, and things he never really ever does get credit for.
Thoughout my hair loss journey I have been in communication with Spencer and he has to continued to help me during my darkest times. He was a catalyst in me starting my own women's hair loss support site, chronicling my own journey in dealing with hair loss and later creating my own community for women. I started my site in 2007 and had no idea how it would massively positively impact the thousands of women who came to it. Just knowing they weren't alone, was a push to help them get on the right track. All this positive change was a result from Spencer Kobren who cared enough to take the time to write back a complete stranger in need back in 1999.
I get emotional and upset when I see people attacking the character of Spencer, because I do know him and know his heart has always been in right place. Not to long ago there was a massive smear campaign that was launched against him online, defamatory things were said, lies posted and unfortunately those posts are used by individuals today that dislike Spencer as some sort of proof that he is lacking in character. He is not.
I often wonder where I would be if it were not for Spencer and I truly dare to even imagine. I am stronger today in dealing with my hair loss than I ever was before. It was his words of support and encouragement, his actions to assist in any way he could, along with the women on my site that are the reason I am fortunate to be where I am today mentally.. in my ability to cope with my hair loss.
I apologize for taking this thread off track, I just wanted to speak out about something I do know about. Please feel free to jump this post and get right back to your topic.